Published 11 May 2021

Primary Immunodeficiency

National Quality Registry for Primary Immunodeficiency (PIDcare)

Registry category: Infectious diseases

Certification level: 3

Central personal data controller (CPUA): Region Jönköping

PIDcare is a quality registry that strives to secure and improve the quality of care for patients with primary immunodeficiency and/or increased susceptibility to infection and autoimmune diseases. It is also created in order to increase the awareness of immunodeficiency disorders.

A web-based portal allows the patients to register their own data concerning self reported health, days with various symptoms, sick days, hospital days, immunoglobulin infusions, use of antibiotics and vaccinations.

Contact information

Find contact information on the registry’s website.



  • Ulrika Forsberg