National Quality Registry for Primary Immunodeficiency (PIDcare)
Registry category: Infectious diseases
Certification level: 3
Central personal data controller (CPUA): Region Jönköpings
PIDcare is a quality registry that strives to secure and improve the quality of care for patients with primary immunodeficiency and/or increased susceptibility to infection and autoimmune diseases. It is also created in order to increase the awareness of immunodeficiency disorders.
A web-based portal allow the patients to register their own data concerning self reported health, days with various symptoms, sick days, hospital days, immunoglobulin infusions, use of antibiotics and vaccinations.
Find contact information on the registry’s website.