A system of around one hundred National Quality Registries provide the Swedish health care system with a unique opportunity to monitor quality and results.
The registries contain individualized data about medical interventions, procedures and outcomes. They are integrated into clinical workflows and have the capacity to generate data in real time.
Each registry is supported by an organisation of health care professionals and patient representatives. They are jointly responsible for developing the registry.
National Quality Registries contribute to Sweden's strong position on health care results. Sweden has among the best survival rates after heart attack, stroke, breast- and colorectal cancer. Sweden is also a leader in the areas of acute cardiac care, diabetes care and hip replacement surgery.
The registries also contribute to innovative e-Health services, patient-centred approaches and decision support functionalities, as well as IT development and integration.
Definition of National Quality Registries in Sweden
A National Quality Registry contains individualised data concerning patient problems, medical interventions, and outcomes after treatment within all healthcare production. It is annually monitored and approved for financial support by an Executive Committee.
National Quality Registries are used in an integrated and active way for continuous learning, improvement, research and management to create the best possible health and care together with the individual.
There are six competence centers to support the National Quality Registries.
In a competence center, several registries share the costs for staff and systems that a single registry could not bear, eg, in technical operations, analytical work, and use of registry data to support clinical quality improvement, and helping to make registry data beneficial for different users.
Hence, a continued development of the registries can be assured although the system follows a decentralized model, i.e. each registry is governed by a professonal collaboration.