The Swedish Pituitary Register
Registry category: Endocrine diseases
Certification level: 2
Central personal data controller (CPUA): Karolinska Universitetssjukhuset
The pituitary tumors are usually benign but can cause severe hormone deficiencies and due to the tumor extension also cause a major visual impact.
The patients are often of working age and require lifelong follow-ups regarding the risk of recurrence as well as control of hormone deficiencies and hormone replacement.
As the pituitary tumors are relatively uncommon, it is important to collect these in a national register.
The purpose of the register is to:
- Ensure that all the patients with pituitary tumors in the country's six healthcare regions receive equal treatment and follow-up
- Evaluate given treatment
- Evaluate the patient's quality of life and ability to work
Find contact information on the registry’s website.