National Quality Registry for Heart Failure (RiksSvikt)
Registry category: Cardiovascular diseases
Certification level: 3
Central personal data controller (CPUA): Region Östergötland
Heart failure is the leading cause of hospitalisation among people over age 65. It can be difficult to diagnose heart failure and more than 50 percent of the patients do not meet the accepted diagnosis criteria.
Both under- and over-diagnosis are common (Dahlström et al OBS-HF studien, Eur. J Heart Failure 2009). Modern treatments with Renin-angiotensin blockade, beta receptor blockers and aldosterone blockers have brought benefits in terms of improved quality of life, reduced mortality and reduced need for hospitalisation. Despite the positive results, only slightly more than 50 percent of patients receive the recommended treatment and of these, the majority does not receive sufficient daily doses of the recommended medications.
In the area of heart failure, there is good evidence for how patients should be treated based on data from large, well-controlled studies. There are also regularly updated guidelines in place for diagnosis and treatment on both the national and European levels.
According to a SIFO study, 78 percent of patients with heart failure do not know what the disease entails. Most patients have poor knowledge about their medications and about their condition, which means that they cannot recognise the signs of deterioration and contact their doctor in time, resulting in an increased frequency of readmissions. Studies have shown that better care and treatment can prevent 50 percent of all hospitalisations.
There is a need to improve both diagnosis and treatment through a stricter adherence to national guidelines. Large, well-controlled studies have demonstrated the benefits (reduced mortality and morbidity and improved quality of life) of treating selected patients with special pacemakers (so-called CRT, with or without ICD (automatic defibrillator)). This is a method that is being increasingly used, particularly among patients for whom medical treatment has not provided the desired effect.
A national heart failure registry visualises for participating regional centres how to follow the guidelines and how each centre stands in comparison to the national average. The purpose of RiksSvikt is to improve the administration of patients with chronic heart failure by providing participating hospitals/medical centres, through RiksSvikt, with on-line reporting of input data on the care provider’s patients. Information is provided in comparison with national and county averages.
The registry also gives the clinics knowledge on how to follow national guidelines. It is also possible to see changes over time (trend analyses) within each clinic online. Feedback is provided to each clinic annually on mortality, morbidity, diagnosis, medical treatment, functional capacity and quality of life among patients with heart failure, and on how this data stands in comparison to the national average.
The registry contains information on underlying diseases, diagnoses, treatment, quality of life (EQ5D), functional capacity (NYHA classification), laboratory values, blood pressure, heart rate and planned follow-up.
Find contact information on the registry’s website.