National Quality Registry for Cystic Fibrosis (CF-registret)
Registry category: Lung and allergy diseases
Certification level: 3
Central personal data controller (CPUA): Region Östergötland
Cystic fibrosis (CF) is the most common fatal recessive hereditary disease. It is characterized by abnormally high chloride and sodium levels in the sweat and generally thick phlegm, with symptoms particularly in the lungs and gastrointestinal tract. Since its start in 1992, the objective of the CF Registry has been to conduct long-term monitoring of all CF patients in Sweden in order to optimise care and thus improve survival.
Note: Variable lists are updated on a regular basis and should therefore be seen as preliminary. For the latest version, please contact the registry.
Find contact information on the registry’s website.