National Quality Registry for Breast Cancer (NKBC)
Registry category: Cancer diseases
Certification level: 1
Central personal data controller (CPUA): Karolinska Universitetssjukhuset
The aim of the National Quality Registry for Breast Cancer is to:
- in an objective and standardised manner, monitor the continuum of care from diagnosis to any recurrence and death
- enable the identification of regional differences
- collectively relate to current guidelines and quality targets set by specialist associations and the National Board of Health and Welfare
- facilitate research and developments in breast cancer
The registry contains data on preoperative diagnostics, tumour data, type of surgery (including oncoplastic procedures), waiting times in diagnosis and treatment, and recurrence rate.
The primary results measured are survival and recurrence rate. Since 2020 NKBC captures PROM data (patient related outcome measures).
The registry provides the opportunity for comparisons and feedback on national, regional and hospital levels on diagnosis, treatment patterns and outcomes. The registry reports data on the national quality indicators developed in conjunction with the Swedish Board of Health and Welfare’s national guidelines for breast cancer.
Find contact information on the registry’s website.