National Quality Registry for Breast Cancer (NKBC)
Registry category: Cancer diseases
Certification level: 1
Central personal data controller (CPUA): Karolinska Universitetssjukhuset
The aim of the National Quality Registry for Breast Cancer is to:
- in an objective and standardised manner, monitor the continuum of care from diagnosis to any recurrence and death
- enable the identification of regional differences
- collectively relate to current guidelines and quality targets set by specialist associations and the National Board of Health and Welfare
- facilitate research and developments in breast cancer.
The registry contains data on preoperative diagnostics, tumour data, type of surgery, waiting times in diagnosis and treatment, long-term and short-term complications and recurrence rate, and patient satisfaction (including cosmetic).
The primary results measured are survival, complication and recurrence rate, and the number of satisfied patients.
The registry provides the opportunity for comparisons and feedback on national, regional and local levels on diagnosis, treatment patterns and outcomes. The registry also provides an opportunity for registration of the national quality indicators developed in conjunction with the Swedish Board of Health and Welfare’s national guidelines for breast cancer.
Find contact information on the registry’s website.