Spinal dysraphism and hydrocephalus
National Quality Registry for Spinal Dysraphism and Hydrocephalus (MMCUP)
Registry category: Diseases of the nervous system
Certification level: 2
Central personal data controller (CPUA): Region Skåne
Open spina bifida (myelomeningocele, MMC), with associated hydrocephalus (“water on the brain”) and neurogenic bladder and bowel dysfunctions, is the congenital disability associated with the greatest and most complex lifelong needs for various highly specialised medical care and treatment. The Swedish Follow-Up Programme for Spinal Dysraphism and Hydrocephalus (MMCUP) is a quality registry aimed at:
- preventing secondary loss of function, morbidity, pain and lower quality of life – complications of MMC and hydrocephalus - through preventative monitoring with early intervention
- ensuring that treatment methods, surgical procedures, and surgically inserted materials that prove to be less effective or harmful are discarded in favour of more effective methods and materials
- ensuring a good standard of care throughout the country.
Find contact information on the registry’s website.