Published 11 May 2021

Congenital heart disease

National Quality Registry for Congenital Heart Disease (SWEDCON)

Registry category: Cardiovascular diseases

Certification level: 2

Central personal data controller (CPUA): Region Skåne

SWEDCON, the National Quality Registry for Congenital Heart Disease, has the aim of monitoring patients with congenital heart disease from before birth through their entire lives. It also includes information on performed surgeries and catheter interventions.

The registry is an amalgamation of the former GUCH registry for adults with congenital heart defects and local paediatric cardiology registries. A paediatric heart surgery portion and a foetal portion are also included.

Contact information

Find contact information on the registry’s website.



  • Ulrika Forsberg