Congenital heart disease
National Quality Registry for Congenital Heart Disease (SWEDCON)
Registry category: Cardiovascular diseases
Certification level: 2
Central personal data controller (CPUA): Region Skåne
SWEDCON, the National Quality Registry for Congenital Heart Disease, is an amalgamation of the former GUCH registry for adults with congenital heart defects, local paediatric cardiology registries and the amalgamation of the former GUCH registry for adults with congenital heart defects and local paediatric cardiology registries. A paediatric heart surgery portion and a foetal portion are also included. The registry has the aim of monitoring patients with congenital heart disease from before birth through their entire lives. It also includes information on performed surgeries and catheter interventions.
Find contact information on the registry’s website.