National Quality Registry for Childhood Epilepsy (BEPQ)
Registry category: Paediatric health
Certification level: K
Central personal data controller (CPUA): Region Östergötland
Epilepsy is the most common chronic neurological disease. There are about 10,000 children in Sweden with epilepsy and about 1000 children develop the disease every year. The treatment of epilepsy is complicated. There are currently about 25 epilepsy drugs that can be used on their own or in combination. Non-pharmaceutical treatment methods include epilepsy surgery, vagus nerve stimulation and dietary therapy. The treatment is often encumbered with potentially serious side effects. Despite the treatment options, 30-40 percent of all patients with epilepsy continue to suffer from seizures. The combination of unpredictable seizures and severe co-morbidity causes great physical, emotional and social stress. Extensive efforts are needed from both the healthcare sector and society at large to assist children with epilepsy and their families.
The aim of the registry is to enable operational development and improvements in the quality, cost-effectiveness and geographic equality of care. Data can also be used for clinical research.
Find contact information on the registry’s website.